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I'm Aware That I'm Rare: the phaware® podcast

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A new podcast series devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. New Episodes every week.

Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because early… Continue Reading >>
A new podcast series devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. New Episodes every week.

Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because early diagnosis and treatment can mean the difference between life and death.

Topics range from the importance of early diagnosis and global PH awareness, to the impact of clinical trials to how patient support and advocacy are paramount to battling this disease.

Learn more about PH at www.phaware.global << Show Less
Featured Audio
Episode 379 - Carol Templeton In this episode, CTEPH patient, Carol Templeton details her complex surgery, called pulmonary thromboendarterectomy (PTE), which involves the removal of chronic clots from the lung vessel and the impact it had on her as the adoptive mom to her 18 month old daughter. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials Share your story: info@phaware.com
Newest Audio
Episode 379 - Carol Templeton In this episode, CTEPH patient, Carol Templeton details her complex surgery, called pulmonary thromboendarterectomy (PTE), which involves the removal of chronic clots from the lung vessel and the impact it had on her as the adoptive mom to her 18 month old daughter. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials Share your story: info@phaware.com
Episode 378 - Kaitlyn Thompson In this episode, pulmonary hypertension patient, Kaitlyn Thompson describes coming to terms with the difficult reality of not being able to carry a pregnancy due to her PH, as well as detailing an emotional recent near death experience. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials Share your story: info@phaware.com
Episode 377 - Erica Hutchison In this episode, pulmonary hypertension patient, Erica Hutchison discusses her long road to diagnosis which included multiple doctors and cardiologists telling her that her PH symptoms and panic attacks my just be "all in her head." Now, 10+ years post-diagnosis, Erica has a passion for art and music and is working on her Doctorate of Music in composition and theory. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials Share your story: info@phaware.com
Episode 376 - Stacy Physick In this episode, Canadian pulmonary hypertension patient, Stacy Physick was diagnosed with PH in 2011. She immediately got her affairs in order, believing she only expected to survive 1-3 years.  Now, 10 years post-diagnosis she shares her journey and her conscious decision to lead a normal life. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials @PHACanada
Episode 375 - Maria Simionato In this episode, Italian pulmonary hypertension patient, Maria Simionato discusses her diagnosis and how a complications following a menstrual period that lasted for over a month led her to be listed for a double-lung transplant surgery. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials
Episode 374 - Evelyn Keltgen In this episode, pediatric pulmonary hypertension patient, Evelyn Keltgen, discusses xxxx Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials
Episode 373 - Gary Bruce In this episode, pulmonary hypertension patient, Gary Bruce, discusses how meeting and marrying another PH patient changed the trajectory of his life and how she inspires him to battle his rare disease. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials
Episode 372 - Gerry Langan In this episode, Gerry Langan (@itsgerrylangan), pulmonary hypertension and heart failure patient advocate, discusses how sharing her story and leveraging social media is how she took back power in an uncontrollable situation after being diagnosed with a disease that is progressive and uncontrollable.  Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials
Episode 371 - Shavini Fernando In this episode, Shavini Fernando discusses her severe pulmonary hypertension diagnosis due to Eisenmenger's Syndrome. After facing multiple cardiac arrests and strokes due to the low oxygen levels in her body, she developed OxiWear, the first ever wearable for continuous blood oxygen monitoring device that alerts patients who are prone to hypoxia to live life independent without having to worry about their oxygen levels. Use Coupon Code "PHA2022" to receive 20% off if you purchase a OxiWear device by 6/30/22. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials
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