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Not Your Average Autism Mom

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Exclusively for Autism Moms and female caregivers raising a child with Autism where we talk ALL things Autism that go hand in hand with our unique parenting journey.
info@notyouraverageautismmom.com
Exclusively for Autism Moms and female caregivers raising a child with Autism where we talk ALL things Autism that go hand in hand with our unique parenting journey.
info@notyouraverageautismmom.com << Show Less
Featured Audio
83. Assessing Your Child's IEP How do I know if my child's IEP is good or good enough? Such a common question.
Today I am giving you things to consider when assessing your child's IEP. What are some red flags? What is and isn't ok?
Questions to ask so that you understand the goals on your child's IEP and when 80% mastery is not ok.
I talk about what you should always do and what I don't recommend that you do. An IEP should be focused on where they are headed and not focused on their deficits right now. The goal is to give them the services and accommodations to help those lacking skills emerge.
If you want to learn more about special education be sure to check out all of the benefits in our Private SISTERHOOD.
www.notyouraverageautismmom.com
Newest Audio
83. Assessing Your Child's IEP How do I know if my child's IEP is good or good enough? Such a common question.
Today I am giving you things to consider when assessing your child's IEP. What are some red flags? What is and isn't ok?
Questions to ask so that you understand the goals on your child's IEP and when 80% mastery is not ok.
I talk about what you should always do and what I don't recommend that you do. An IEP should be focused on where they are headed and not focused on their deficits right now. The goal is to give them the services and accommodations to help those lacking skills emerge.
If you want to learn more about special education be sure to check out all of the benefits in our Private SISTERHOOD.
www.notyouraverageautismmom.com
82. Relationship Dynamics in the Teen Years Teenage years are hard, without a doubt. As their dependency on us and our need to care for them and control their world shifts, it can be super uncomfortable for both them and us.
In today's episode, I am talking about the most common things that come up when I am coaching moms of teens or pre-teens. I am giving you strategies I hope will help you navigate through this time with less resistance from them and for you, less frustration.
I also talk about parenting from a place of faith and hope instead of from fear. I see many parents who parent from a place of fear and that is never recommended and in this episode, I talk about what that means and why it isn't effective.
If you are feeling alone on your journey or maybe you are looking for other moms to connect with who understand your day-to-day challenges, be sure that you check out all of the benefits available to you in our PRIVATE SISTERHOOD.
www.notyouraverageautismmom.com
81. Toe Walking and Autism In this episode, I am talking about one of the behaviors that many parents see in their child diagnosed with autism and that is toe walking. What is toe walking? What should you do or not do if you are concerned about your child's toe walking?
Research tells us that as many as 25% of autistic children engage in some form of toe walking.
Toe walking isn’t specific to autism but it is more common in children with autism than other forms of developmental delays.
If you are looking for a community of amazing women to connect with who are all traveling this same unique autism parenting journey, please be sure to check out our private membership and all of the benefits you get as a member.
www.notyouraverageautismmom.com
80. Today I am Talking Labels In this episode, I am talking about a HOT topic in our autism world and one that many people have strong beliefs about one way or another and that is high functioning vs low functioning and functioning labels in general.
The terms high functioning and low functioning while many people don’t agree with them are still being used all too often. I honestly believe that the terms don’t provide an actual clear picture of what the child is capable of or what areas they might excel in.
I believe that they are subjective and always up for interpretation. What I consider high functioning or low functioning someone else, maybe even you might disagree with, so that is what in my opinion makes labeling high functioning or low functioning inaccurate.
What if instead of relying on labels, we simply focused on what the individual's needs are without having to consider a label or the level of functioning. I believe if we did that, it would serve our children to the highest level allowing them to live their best life with the support they need.
If you are looking for a community of amazing women to connect with who are all traveling this same unique autism parenting journey, please be sure to check out our private membership and all of the benefits you get as a member.
www.notyouraverageautismmom.com
79. Uncharted Territory in Special Education I have done many episodes on different areas and important things you need to know about special education, today, I am going to specifically talk about some of the misconceptions parents often have about special education.
The school doesn't develop your child's IEP. An IEP is developed by a TEAM and it has nothing to do with what is or isn’t available at your child’s school but instead, it has everything to do with what YOUR CHILD’S needs are.
Your child does not have to be in a self-contained classroom if they qualify for Special Education. Many students with IEPs are in general education classrooms with their peers and they don't ride the "short bus".
You must determine if the existing goals have been met and the only way you can determine that is by the data AND if the student has not mastered the goals, they should not just be just taken off the IEP and different goals written.
This and so much more in this episode...
If you want to learn more about special education be sure to check out all of the benefits in our Private SISTERHOOD.
www.notyouraverageautismmom.com
78. Having an Autistic Child is on the Rise First of all, it’s important to know that while it’s evident that the rate of diagnosis has significantly increased in recent years, researchers only began tracking autism rates in the year 2000. For some perspective on the numbers, my son Jordan who is 25 was diagnosed when he was 5 years old and when he was diagnosed, it was 1 in 158 and now, in 2021 that number is 1 in 44.
That is obviously a HUGE increase, but experts tell us that this rise in numbers is a direct consequence of the increased awareness of autism as well as the changes to the diagnostic criteria in the DSM-5 edition which was published in May of 2013.
In this episode, I talk about some of the changes in the DSM-5 as well as a recommendation by the American Academy of Pediatrics which both have likely led to more diagnoses of children who might have otherwise gone undetected.
There are also variations in the differences in diagnosis from State to State. Some are significantly higher than 1 in 44 and some are lower but experts remain convinced that this is simply due to how autism is diagnosed and documented in different communities.
Raising a child or children with autism isn't bad, it isn't terrible, it is just a different and unique parenting journey.
If this is your journey, accepting it and not resisting it will be the best thing that you can do for your child and for you.
If you are feeling alone on your journey or maybe you are looking for other moms to connect with who understand your day-to-day challenges, be sure that you check out all of the benefits available to you in our PRIVATE SISTERHOOD.
www.notyouraverageautismmom.com
77. It's Only 1-Hour, What's the Big Deal? Most of our kids are so rigid with their routines and schedules and breaking that pattern causes a disruption.
So this Sunday, March 13that 2 am we are moving those clocks ahead 1 hour, and that likely means that in your house, you will have an adjustment period, right? In this episode, I am giving you some tips and suggestions on things that you can do in advance of the clock's changing.
There is no "secret" to make it any easier. Their bodies have to adapt and adjust.
If you or your kids want to know more about Daylight Savings Time or just time in general, someone shared this link with me many years ago and I have kept it because it was so helpful for Jordan and me, to be honest.
https://blog.littlelives.com/explain-to-kids-daylight-saving-time-76f543ed4104
Just know that you are not alone, there are millions of moms just like you who might be dreading this time, even though, it is only 1-hour.
Follow us on Facebook at https://www.facebook.com/NotYourAverageAutismMom2020
and if you want more information on joining our Private Sisterhood and working with me, click the link below for details
www.notyouraverageautismmom.com
76. Should I Pursue an Autism Diagnosis? Many parents find themselves unsure when they begin to see their child struggle in certain areas if they should just “wait it out”? Maybe you are thinking that he or she will grow out of it, get past these quirky or odd things and catch up. Is that you? I have worked with many moms who were sitting in that place of “hopeful”.
What I want you to consider is why are you hesitant or even resistant to having him or her evaluated? I know that for many parents contemplating the decision to get their son or daughter evaluated it comes down to fear of the unknown but here is what I do know, we know that early intervention is key, and without a proper evaluation to consider their deficits and make a plan they may not be getting all that they need to bridge the gap.
If the worst thing that happens in your mind is that they get diagnosed, what are you making that mean? Ask yourself that question and answer it honestly. The truth is that if he or she is autistic, the earlier you can begin helping them learn in a way that works for them, the better chance they have to build their skill-set early on to help them navigate their world.
Having your child diagnosed with autism can be an extremely difficult time for the family but this is the first and most important step. When children go undiagnosed, so many areas of their life can be difficult to understand.
If you decide to pursue the diagnosis, there are some things that you can do ahead of time to be prepared for the appointment and one of those is completing a developmental milestone chart in advance.
Below are links to a few of the most common or most used charts.
https://www.cdc.gov/ncbddd/actearly/milestones/index.html
https://www.cdc.gov/ncbddd/actearly/pdf/checklists/Checklists-with-Tips_Reader_508.pdf
https://www.hopkinsmedicine.org/community_physicians/patient_information/_docs/form_mchatr.pdf
Here is what I want to leave you with today, first and most important, you need to know that getting an evaluation or assessment does not necessarily always lead to a diagnosis. The outcome is not certain.
www.notyouraverageautismmom.com
75. The Taboo Topic of Self-Injurious Behaviors Yes, we are talking about it again because you still have questions and so I'm going to dive in a little bit more. While self-harming behaviors look different for our children with autism and individuals without autism, they are very prevalent in the autistic population. You may have heard them referred to as SIB for short.
For most individuals on the spectrum, these behaviors are happening in a very rhythmic or repetitive way and that then leads us to believe that they could be using them to meet a specific need. It could be head-banging, hand-biting, hitting themselves with their fists, skin picking, or pulling their hair out.
It might be that they are finding them soothing or stimulating and these types of reasons are definitely more unique to those with autism than individuals who are not on the spectrum.
The first thing to consider is what is the behavior providing them and that in itself is another one of those mysteries that we often find ourselves unable to understand or uncover. Whatever steps you decide to take it is critically important that all of it is coming from a place of love and a willingness to help them figure it out and find a way to re-direct that behavior to one that is more positive.
While many autistics engage in self-injurious behaviors, it is not just a "part of autism" and it generally won't just go away on its own.
If your child is exhibiting self-injurious behaviors, trust in your professionals and physicians to navigate you in the right direction.
You can also go back and listen to episode #64 for more information on this topic.
www.notyouraverageautismmom.com
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