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RealTalk MS

Jon Strum cuts through all the jargon and breaks down the latest multiple sclerosis news. You’ll meet the scientists who are creating tomorrow’s MS treatments today. You’ll hear from the experts discussing how the latest tweaks and changes to our healthcare laws will impact your MS treatment. And we’ll be talking to the courageous MS warriors who are out there advocating on behalf of the MS community every day, as well as the men and women who are committed to living their best lives with MS a… Continue Reading >>
Jon Strum cuts through all the jargon and breaks down the latest multiple sclerosis news. You’ll meet the scientists who are creating tomorrow’s MS treatments today. You’ll hear from the experts discussing how the latest tweaks and changes to our healthcare laws will impact your MS treatment. And we’ll be talking to the courageous MS warriors who are out there advocating on behalf of the MS community every day, as well as the men and women who are committed to living their best lives with MS and living their best lives as MS caregivers. If you're dealing with multiple sclerosis in your life -- as a patient, caregiver, family member, or friend -- join us each week for RealTalk MS. << Show Less
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Episode 242: No Masks or Proof of Vax? Staying Safe in the Next Normal If You're Living with MS with Dr. Nancy Sicotte Mask mandates have mostly ended, and bars, restaurants, public buildings, and other businesses no longer require proof of vaccination. It looks like the COVID-19 pandemic is over. Except for the fact that we're seeing cases of the latest COVID subvariant continue to rise in cities across the country and around the world. So, how do we navigate this post-pandemic world? And if you happen to be immunocompromised, how do you stay safe? Joining me as she has throughout the pandemic, with an update including the steps you can take to stay safe as the world re-opens is Dr. Nancy Sicotte. Dr. Sicotte is a professor and Chair of the Department of Neurology at Cedars-Sinai Medical Center in Los Angeles. Dr. Sicotte also Chairs the National MS Society’s National Medical Advisory Committee and she leads the MS Society's COVID-19 Advisory Group. We're also talking about a workshop that brought together a group of global experts to weigh in on autologous hematopoietic stem cell transplantation (aHSCT) as a viable treatment for MS. We're sharing the details about an upcoming clinical trial that will test a myelin-restoring treatment for people with relapsing-remitting MS. Evidence from multiple studies shows that members of the Black and Hispanic communities who live with MS can experience a more severe disease course and a higher disability burden. We'll share the details of a presentation from the Academy of American Neurology annual meeting that sheds new light on what may be driving these disparities.  And we'll tell you how you can register to participate in the National African-Americans with MS Registry. We have a lot to talk about! Are you ready for RealTalk MS??! Welcome to the Next Normal!  :22 ECTRIMS hosts an Autologous Hematopoietic Stem Cell Transplantation (aHSCT) workshop  1:45 FDA Approves clinical trial for a myelin-restoring treatment  6:04 New data may explain racial and ethnic disparities in MS disease severity and treatment  7:45 The National African Americans with MS Registry  10:13 Dr. Nancy Sicotte explains what people with MS need to know to stay safe as they re-enter a post-pandemic world   11:52 Share this episode  32:31 Download the RealTalk MS app for your iOS or Android device   32:51 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/242 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance ECTRIMS Focused Workshop: Autologous Hematopoietic Stem Cell Transplantation For Treatment of MS and Related Diseases https://ectrims.eu/ongoing-educational-programmes/focused-workshops National MS Society Recommendations for aHSCT-Bone Marrow Transplant for MS https://nationalmssociety.org/About-the-Society/News/National-MS-Society-Releases-Recommendations-for-a National African Americans with MS Registry <a href="https://www.naamsr.org" rel
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Episode 242: No Masks or Proof of Vax? Staying Safe in the Next Normal If You're Living with MS with Dr. Nancy Sicotte Mask mandates have mostly ended, and bars, restaurants, public buildings, and other businesses no longer require proof of vaccination. It looks like the COVID-19 pandemic is over. Except for the fact that we're seeing cases of the latest COVID subvariant continue to rise in cities across the country and around the world. So, how do we navigate this post-pandemic world? And if you happen to be immunocompromised, how do you stay safe? Joining me as she has throughout the pandemic, with an update including the steps you can take to stay safe as the world re-opens is Dr. Nancy Sicotte. Dr. Sicotte is a professor and Chair of the Department of Neurology at Cedars-Sinai Medical Center in Los Angeles. Dr. Sicotte also Chairs the National MS Society’s National Medical Advisory Committee and she leads the MS Society's COVID-19 Advisory Group. We're also talking about a workshop that brought together a group of global experts to weigh in on autologous hematopoietic stem cell transplantation (aHSCT) as a viable treatment for MS. We're sharing the details about an upcoming clinical trial that will test a myelin-restoring treatment for people with relapsing-remitting MS. Evidence from multiple studies shows that members of the Black and Hispanic communities who live with MS can experience a more severe disease course and a higher disability burden. We'll share the details of a presentation from the Academy of American Neurology annual meeting that sheds new light on what may be driving these disparities.  And we'll tell you how you can register to participate in the National African-Americans with MS Registry. We have a lot to talk about! Are you ready for RealTalk MS??! Welcome to the Next Normal!  :22 ECTRIMS hosts an Autologous Hematopoietic Stem Cell Transplantation (aHSCT) workshop  1:45 FDA Approves clinical trial for a myelin-restoring treatment  6:04 New data may explain racial and ethnic disparities in MS disease severity and treatment  7:45 The National African Americans with MS Registry  10:13 Dr. Nancy Sicotte explains what people with MS need to know to stay safe as they re-enter a post-pandemic world   11:52 Share this episode  32:31 Download the RealTalk MS app for your iOS or Android device   32:51 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/242 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance ECTRIMS Focused Workshop: Autologous Hematopoietic Stem Cell Transplantation For Treatment of MS and Related Diseases https://ectrims.eu/ongoing-educational-programmes/focused-workshops National MS Society Recommendations for aHSCT-Bone Marrow Transplant for MS https://nationalmssociety.org/About-the-Society/News/National-MS-Society-Releases-Recommendations-for-a National African Americans with MS Registry <a href="https://www.naamsr.org" rel
Episode 241: American Academy of Neurology Annual Meeting Recap with Prof. Xavier Montalban I spent last week attending the American Academy of Neurology (AAN) Annual Meeting and in this week's episode of RealTalk MS, I'm sharing an overview of what I saw and what I heard. Each year at the AAN meeting, the American Academy of Neurology and the National MS Society award the John Dystel Prize for MS Research. Joining me on today's podcast is this year's recipient of the Dystel Prize, Professor Xavier Montalban. We're also talking about how the COVID-19 pandemic has affected MS research and clinical care. We're sharing encouraging news about two potential disease-modifying therapies. And we'll share some of the over-arching themes that kept popping up in a number of different meetings, presentations, and conversations during the AAN annual meeting. We have a lot to talk about! Are you ready for RealTalk MS??! The impact of the pandemic on MS research and clinical care   :53 Results of Phase 2 extension study show Evobrutinib effective in reducing relapse rates in relapsing forms of MS   4:53 Results of Ublituximab Phase 3 post-hoc analyses announced    7:16 Dr. Stephen Hauser receives the Scientific Breakthrough Award  9:25 The importance of making complex science easy to understand for people affected by MS  10:29 The importance of increasing clinical trial participation among members of minority communities  12:48 The importance of caring for the caregiver  14:04 John Dystel Prize for MS Research awarded to Prof. Xavier Montalban  15:40 My conversation with John Dystel Prize recipient Professor Xavier Montalban  16:25 Share this episode  24:51 Have you downloaded the RealTalk MS app?   25:12 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/241 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jonstrum@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.</p
Episode 240: Hypnosis and MS with Dr. Mark Jensen Research has shown that hypnosis is an effective treatment for managing chronic pain, including pain associated with MS.  My guest, Dr. Mark Jensen, is a Professor and Vice-Chair of the Department of Rehabilitation Medicine at the University of Washington. Dr. Jensen has devoted his career to developing effective treatments for pain and is an expert on hypnotic interventions. We're also talking about a research team that may have learned how to successfully penetrate the blood-brain barrier (and why that could be great news for people living with MS!). We'll share the results of a 10-year study in France that showed very positive outcomes for people living with highly active relapsing-remitting MS. We'll tell you about 66 research projects that have just been funded by the MS Society of Canada. And we'll share results from a survey that identify pandemic-specific depression and anxiety among people living with MS. We have a lot to talk about! Are you ready for RealTalk MS??! Researchers may have found a way through the blood- brain barrier   1:17 10-year study reveals surprising results   4:19 MS Society of Canada announces funding for 66 research projects    8:07 Researchers identify pandemic-related depression among people living with MS  9:11 Dr. Mark Jensen discusses treating MS-related chronic pain with hypnosis  12:43 Share this episode  30:58 Have you downloaded the RealTalk MS app?   31:19 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/240 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jonstrum@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance STUDY: Endothelial Unc5B Controls Blood-Brain Barrier Integrity https://www.nature.com/articles/s41467-022-28785-9 STUDY: Ten-Year Follow-Up After Mitoxantrone Induction For Early Highly Active Relapsing-Remitting Multiple Sclerosis: An Observational Study of 100 Consecutive Patients https://sciencedirect.com/science/articles/abs/pii/5003578722000431 MS Society of Canada Research Funding Announcement https://mssociety.ca/information-for-researchers/funding-announcements National MS Society MS Navigator Contact Info Phone: (800) 344-4867 Email: contactusnmss@nmss.org Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices htt
Episode 239: New Research Goals Set by the International Progressive MS Alliance with Dr. Robert Fox A decade ago, the International Progressive MS Alliance didn't exist. Today, it can be credited with changing the global conversation about progressive MS research, elevating the progressive MS research agenda and moving the work forward. A few weeks ago, the Alliance announced the details of an ambitious strategic plan that will guide their work over the next 3 years.  Joining me to talk about the new goals that were set by the Alliance, and what that means for people affected by progressive MS, is the Chair of the Alliance's Scientific Steering Committee, Dr. Robert Fox. The MS International Federation conducted a survey and we're wondering whether the responses have raised a larger question? We're also talking about a study that showed how an online mindfulness program significantly improved depression for people living with MS. We're sharing study results that show your nose knows when your DMT is working well for you. We'll also share the details about an exciting undertaking at the University of Colorado that may lead to treating people so that they completely avoid the symptoms of MS. And we'll tell you about a small trial that demonstrated the effectiveness of an experimental stem cell therapy as a potential treatment for progressive MS. We have a lot to talk about! Are you ready for RealTalk MS??! International Progressive MS Alliance unveils a new 3-year strategic plan  :22 Survey results raise a larger question -- How do we share MS research news with people affected by MS???  1:04 Online mindfulness provides significant improvement for managing depression among people with MS    16:14 Using your nose to determine the efficacy of your disease-modifying therapy  8:33 NeuroGenesis cell therapy shows promise as a potential treatment for progressive MS  14:14 Dr. Robert Fox discusses what's next for the International Progressive MS Alliance  17:28 Share this episode  28:07 Have you downloaded the RealTalk MS app?   28:27 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/239 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jonstrum@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance International Progressive MS Alliance https://progressivemsalliance.org STUDY: A Randomized Controlled Trial of a Web-Based Mindfulness Programme for People With MS With and Without a History of Recurrent Depression https://journals.sagepub.com/doi/10.1177/13524585211068002 STUDY: Olfactory Threshold Predicts Treatment Response in Relapsing Multiple Sclerosis https://journals.sagepub.com/doi/10.1177/1354285221079744 STUDY: Effects of Mesenchymal Stem Cell Transplantation on Cerebrospinal Flui
Episode 238: The Pathways to Cures Research Roadmap with Dr. Carol Whitacre and Prof. Alan Thompson The Pathways to Cures initiative is focused on stopping MS progression, restoring lost function, and ending MS forever. This bold initiative has already been endorsed by more than 20 MS research and patient organizations around the world. And now, the publication of the Pathways to Cures Research Roadmap has brought us to a pivotal moment in the history of MS research. Joining me in this episode of RealTalk MS are two very special guests, Dr. Carol Whitacre and Professor Alan Thompson. We're taking a close look at what Pathways to Cures is all about, where we are on the Pathways to Cures Research Roadmap, and what this initiative means for people affected by MS. Dr. Whitacre is the former Senior Vice-President of Research at The Ohio State University, and the current Chair of the National MS Society's Scientific Advisory Committee. Professor Thompson is a clinician scientist who has been the recipient of virtually every high honor and award that's given in the field of multiple sclerosis research, including the John Dystel Prize for MS Research in 2017, the Sobek Research Prize in 2020, and the 2021 Charcot Award, which recognizes a lifetime of achievement in outstanding research into understanding and treating MS. We have a lot to talk about! Are you ready for RealTalk MS??! The Pathways to Cures Research Roadmap  :22 Dr. Carol Whitacre discusses the significance of the Pathways to Cures initiative  3:34 Prof. Alan Thompson reviews the status of MS research to stop progression, restore lost function, and end MS, then looks ahead to next steps in the Pathways to Cures research roadmap    16:14 Share this episode  33:52 Have you downloaded the RealTalk MS app?   34:12 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/238 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jonstrum@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance RealTalk MS Episode 125: The Pathways to Cures Think Tank  https://realtalkms.com/125 Pathways to Cures https://pathwaystocures.org Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, <a href="https://twitter.com/RealTalkMS_j
Episode 237: Raising MS Awareness with Marti Hines It's MS Awareness Week and my guest is Marti Hines. Marti is a successful event producer, entrepreneur, film producer, and director. She was diagnosed with MS in 2018, and Marti has been very transparent in sharing the highs and lows of her MS journey on her social channels.  Like so many people living with MS, Marti has an amazing energy and a seemingly endless supply of resilience. You're going to enjoy meeting her.  We're also talking about why increasing diversity in clinical trials is so vital. And we're highlighting the Consensus Statement on Health Equity in Clinical Trials and Real-World Evidence Data Collection that was released by the National MS Society's Corporate Healthcare Roundtable. You'll learn about the Cost Plus Drug Company, billionaire Mark Cuban's effort to disrupt the prescription drug market by offering generic drugs that truly are affordable. And we'll share the results of a study that shows that a keto diet may be beneficial for people living with relapsing MS. We have a lot to talk about! Are you ready for RealTalk MS??! It's MS Awareness Week!  :22 MS Society Corporate Healthcare Roundtable issues a consensus statement on health equity in clinical trials  1:03 Mark Cuban Cost Plus Drug Company is compassionate capitalism in action  5:59 Keto diet shows benefits for people with  relapsing MS  11:18 Marti Hines talks about why sharing her MS journey is important  14:51 Share this episode  26:08 Have a minute? Leave a rating and review for RealTalk MS!   26:28 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/237 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jonstrum@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance National MS Society MS Awareness Week https://nationalmssociety.org/msawareness National MS Society Corporate Healthcare Roundtable Consensus Statement on Health Equity in Clinical Trials and Real-World Evidence Data Collection  https://nmsscdn.azureedge.net/NationalMSSociety/media/MSNationalFiles/Documents/Corporate-Healthcare-Roundtable_Consensus-Statement-on-Health-Equity-in-Clinical-Trials-and-Data-Collection-(2).pdf National MS Society Public Policy Conference Replay https://nationalmssociety.org/ppc Mark Cuban Cost Plus Drug Company https://costplusdrugs.com STUDY: Ketogenic Diet as a Strategy for Improved Wellness and Reduced Disability in Relapsing Multiple Sclerosis https://index.mirasmart.com/aan2022/PDFfiles/AAN2022-000622.html Join the RealTalk MS Facebook Group <a h
Episode 236: How MS Affects Mind, Mood, and Memory with Dr. Anthony Feinstein If you're living with MS, there's a good chance that, at some point, you're going to deal with depression, cognitive issues, or both of these common MS symptoms. We're taking a deep dive into how these symptoms can impact your everyday life at home and at work with the author of Mind, Mood, and Memory: The Neurobehavioral Consequences of Multiple Sclerosis, Dr. Anthony Feinstein. We're also highlighting some of the MS research that was presented two weeks ago at the ACTRIMS Forum, the annual meeting of the Americas Committee for Treatment and Research in Multiple Sclerosis.  You'll hear how artificial intelligence is being used to predict how someone will respond to different disease-modifying therapies. You'll learn about the efficacy of stem cell therapy in treating aggressive MS. And we'll share the results of a research project designed to calculate the economic burden of MS in the United States. We have a lot to talk about! Are you ready for RealTalk MS??! Thanks for participating in the Public Policy Conference!  :22 Why we talk about depression and cognitive issues on this podcast  :47 AI helps predict treatment response in primary progressive MS  3:02 Stem cell therapy shows benefits in treating aggressive MS  6:28 Study measures the economic burden of MS  8:32 Dr. Anthony Feinstein discusses how mind, mood, and memory impact MS  12:31 Share this episode  28:34 Download the RealTalk MS app for your iOS or Android device   28:56 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/236 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jonstrum@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance "Mind, Mood, and Memory: The Neurobehavioral Consequences of Multiple Sclerosis" on Amazon.com  https://www.amazon.com/Mind-Mood-Memory-Neurobehavioral-Consequences-ebook-dp-B099NXZMMS/dp/B099NXZMMS/ref=mt_other STUDY: A Comprehensive Assessment of the Total Economic Burden of Multiple Sclerosis in the United States https://ectrims2021.abstractserver.com/program/#/details/presentations/557 Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review <a href="https://realt
Episode 235: National MS Society Public Policy Conference Preview with Bari Talente I've always believed that the things people affected by MS want most -- things like access to quality healthcare, affordable prescription medications, and funding for MS research -- are all functions of public policy. The people who decide whether we get those things are our elected officials at both the state and federal level. That's why advocacy is a priority. The National MS Society's Public Policy Conference is taking place on March 7th. Joining me with a preview of what we can expect to see and hear at this year's conference, as well as how you can register to participate, is the MS Society's Executive Vice-President of Advocacy and Healthcare Access, Bari Talente. Last week, the America's Committee for Treatment and Research in Multiple Sclerosis convened the 2022 ACTRIMS Forum, their annual research conference. One of the highlights of the ACTRIMS Forum is the presentation of the Barancik Prize for Innovation in MS Research. This year's recipient of the Baranick Prize is Dr. Amit Bar-Or, who was recognized for his pioneering work in uncovering how the immune system drives MS and his cutting-edge research focusing on precision medicine to achieve long-term remission and, ultimately, prevent MS progression. Dr. Bar-Or also joins me on this episode of the podcast to talk about his innovative work aimed at improving outcomes for people living with MS. We have a lot to talk about! Are you ready for RealTalk MS??! Why talking about MS advocacy is so important  :22 Greetings from the 2022 ACTRIMS Forum  1:47 My conversation with Dr. Amit Bar-Or  3:54 We're just days away from the PPC  12:43 Bari Talente discusses the value of MS advocacy and the legislative issues that we'll be talking about at the Public Policy Conference  13:19 Share this episode  27:25 Download the RealTalk MS app for your iOS or Android device   27:49 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/235 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jonstrum@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance Register for the MS Society's Public Policy Conference Text "PPC" to 52886 or visit https://nmss.6connex.com/event/PPC/login Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review<
Episode 234: Managing Your Emotional Health As COVID-19 Becomes Endemic with Dr. Meghan Beier and Emily Reilly Many of our local, state, and national leaders seem to be declaring that the pandemic has ended and it's back to business as usual. But if you're living with MS, how comfortable are you with the idea of being out in a world where everyone isn't fully vaccinated, and mask mandates have been cancelled? Dr. Meghan Beier and Emily Reilly join me to discuss how to manage your fear and anxiety, build resilience, and deal with the emotional impact of living life in a world where COVID-19 is considered an endemic virus. Dr. Beier is an Assistant Professor of Physical Medicine and Rehabilitation and Johns Hopkins University School of Medicine and a psychologist with specialized training in health psychology, neuropsychology, and multiple sclerosis. Emily Reilly is a certified physical trainer and a National MS Society staff member on the Advocacy and Healthcare Access Team. Emily lives with MS, and we'll talk with Emily about how her life has been impacted by the pandemic and how she's found ways to cope with some challenging but all too familiar situations. We'll also share details of the new 3-year strategic plan unveiled by the International Progressive MS Alliance. We'll tell you about new investments in MS research in the U.K. You'll hear about how iConquer MS is expanding its outreach to include kids and teens living with MS and their parents. And we'll share our plans for attending the first MS research conference in person as the ACTRIMS Forum 2022 gets underway this week. We have a lot to talk about! Are you ready for RealTalk MS??! The ACTRIMS Forum 2022 begins this week  2:33 International Progressive MS Alliance Unveils a 3-Year Strategic Plan  5:38 iConquer MS expands to include pediatric MS  8:25 About our show notes  9:47 U.K. MS Society invests $1.5 million in new research  11:55 Dr. Meghan Beier and Emily Reilly discuss dealing with the emotional impact of the pandemic  14:13 Share this episode  31:12 Download the RealTalk MS app for your iOS or Android device   31:33 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/234 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jonstrum@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance Managing MS and Comorbidities with Dr. Ruth Ann Marrie https://realtalkms.com/232 International Progressive MS Alliance https://progressivemsalliance.org iConquer MS Survey for Kids and Teens Living with MS https://survey.alchemer.com/s3/6663544/Pediatric-Survey-Kids-Teens iConquer MS Survey for Parents of Kids or Teens Living with MS <a href="https://survey.alchemer.com/s3/6665289/Pediatric-Survey-Paren
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